Out of It
Hey Everyone, I have really been having a hard time of it and have just now caught up on my mail reading. I haven't touched my computer since the 21st. That's a record. It was comforting to read all the post. I have been migraining like crazy and refusing to go back in the hospital. I am going to see a new neuro next week though. The one I have been seeing has been so nonchalant. Even my other neuro for my seizures said so, so at least I don't feel like its me. I am so sick of this and I feel completely useless to my family. I know that in this group you understand what I am saying. I am tired of being tied down in bed and time seems to have no real meaning for me at this time since my memory is so bad. I feel so alone and frustrated that the docs haven't been able to break this cycle that I am in now. It has been months. Oh, I sound pitiful so I will sign off for now. Sandra
Sandra, Don't worry about sounding pitiful, we're here to support each other through this hell known as migraines. Go ahead and write as much as you need to. I hope you feel some relief soon! Kelsey ____ "A friend is someone who understands your past, believes in your future, and accepts you today just the way you are." Anonymous
Good luck Red Bird. I suggest finding a pain clinic near you. In my case at least they listened and have been trying to help. Dick in AZ
God luck in your search for a new doc. I went through that and found a great one. My firts neuro passed away last summer, but the new one is every bit as good. Don't settle for second-best. Jeff
In a message dated 99-04-03 08:56:26 EST, you write: << I feel so alone and frustrated that the docs haven't been able to break this cycle that I am in now. It has been months. Sandra, I hope you are bettersson, I wish I had some suggestions. we will add you to our prayer list. Cathy
Dear Dick, I ask my neuro about a pain management clinic and he didn't say much. I am seeing a migraine neuro this week. If she doesn't help I am ready to try anything. I can't exist like this and my family needs me. What do they do for you at a pain mgmt. clinic? Sandra
Hi Sandra, The reason I suggested a pain clinic is that is their primary job - managing pain - not Alzheimer's, stroke or whatever else neuro's handle. In other words, supposedly, a pain clinic's whole purpose in life is to help you manage your pain; i.e., they take an interest in your problem. The pain clinic I transferred to from the neuro I was initially seeing hasn't done anything different for me. It is still a guessing game as to what will work. I feel better but certainly not where I want to be. I think the key word is interest. The pain clinic I go to in Scottsdale AZ is run by a lady neuro who suffers from migraines. So she knows and understands what you are talking about when you are describing your headache pain - and, I believe, empathizes. If the neuro you are seeing is a migraineur and takes an interest in your particular problem, then forget about finding a pain clinic. The initial neuro I was seeing said he was a migraineur but didn't seem to take an interest in my problem; consequently, the switch. Have I babbled on long enough? Good luck. I hope and pray all future days are headache free. Dick in AZ