Long Time No Talk! - LONG
Hello everyone! Remeber me??!! I have not been keeping up with my 'puter stuff lately, so that's why you haven't heard from me. I did catch up on reading my mail however & would like to welcome all the new people to the list. As you have probably already figured out, you get alot out of it! Anyway, it's my turn to whine! As some of you may recall, I have said that I don't get very severe migraines, but I get them alot!!! Well for the past several months (3 or so) they had been down to about 5-6/month. But all of a sudden,I have been hit with the constant thing again! It all started about 2-3 weeks ago. On the 2nd day, I figured out that the stuff I had (Zomig & Maxalt) were not working. So I did as you all suggested & my hubby brought me to the ER. Now I have done quite a bit of research on meds, but naturally don't know as much as the docs do, right???!!! Anyway, they give me a shot of Toradol!! I asked what it was & was pesimistic (spelling?) so even asked "what if it doesn't work"? She says, then you'll just have to let it run its course! By that time my kids had been with my mother in law for 3 hours & we were starving & I was realizing that I wasn't getting anywhere, so we left, with no relief from the shot! So, bedtime came & fell back on the Zomig, despite how they have come to make me feel! I was able to get to sleep, but within an hour of waking up it was back. Then, I call my GP & they suggested taking 3 Advil or go back to ER!! Yeah right!!! By this time I am sooooo fried & sick of people treating me like a junkie. Re-decided (like that one:o)) that the docs here in Duluth, MN don't know anything about migraines!! Decided to call the Headache specialist in Minneapolis whom I had been seeing, but put off because of the expense involved. The doc on call gave orders to my ER to give me DHE. I hadn't heard of it, but he explained it well. I had that done & it did work - only had one treatment though & it came back the next day. I was told I could come back, but it took so much time, that it wasn't worth it. So I got into my HA doc in Mpls. the following week & once again she was great!!! She really understands this stuff & is very sympathetic! Told me I didn't have to worry about coming all the way down there all the time & that we could just do things over the phone. Please bear with me, I'm almost done! She added Elavil (still taking the Wellbutrin, which works very well on my depression & anxiety) & gave me samples of the DHE nasal spray, refilled my Fiorinal, added Cafergot & Compazene. So I started the Elavil 1 week ago & am gradually increasing it. I have used the Cafergot in conjunction with the Fiorinal & though it takes a few doses, it seems to be helping. I'm still getting them almost daily at this point, but hopefully that will change. What is everyone else's experience with DHE? Or any of the others for that matter? My doc is willing to try anything, so if you have any suggestions, I'd appreciate them. I have learned from my mistake & will never rely on the docs here, & that I've got an ally in my specialist. I aplogize for this being so long, but just had to fill you all in & get feedback. Thanks for listening! God Bless, Sue W
Hi Suzy, welcome back. When I finally got referred to the headache clinic (after my GP aid he didn't know what else he could do for me; at the same time, his staff told me wife that they referred patients to the headache clinic "all the time"), one of the drugs I was put on was Migranal, which is a DHE nasal spray. It was then available in Canada, but not in the US, but I know it's available south of the border now. I found that for a while, Migranal would abort a migraine or at least reduce its intensity. Later, the effect was less and less useful and I found that if I already felt like I might throw up, Migranal greatly increased that feeling. Also, if I didn't feel like I'd have to throw up, then after taking Migranal, I did feel that way. According to my neuro, Migranal has a good success rate and I hope you're one of those who benefits from it. So far, none of the drugs they've tried me on have worked, so the fact that neither did Migranal shouldn't make you think it won't work for you. Jeff