I'm forwarding this from Sandra
Hi Lyn, It is so good to hear from you. Would you believe that I haven't touched this puter since Thursday. I had an appt. with my psychologist Friday and Saturday I was busy having seizures. Sunday was Father's Day, so the whole klan gathered at my Mom's. I slept through most of it ( I was wore out from the day before), but I think that my Dad had a really good time and we had a feast. The bad part is that I had a 12+ yesterday because of all of the commotion. Luckily I already had an appointment with my M.D. to tell her about everything new going on and she gave me a referral to a rheumatologist to get checked for fibromyalgia. There was a new nurse that I didn't know. She asked me if I was the one with migraines. I have become quite famous at my doctor's office because of my migraines and that time that I had those four granmal seizures. People speak to me that I don't even know, but they know me! I am so glad that you wrote. I had planned on writing to someone on the list this morning just let everyone know what was going on and to say "Hi", so it was quite a coincidence that you wrote this morning, although I don't really believe in coincidences. If you don't mind, send this on to the group. HI EVERYBODY! I miss all of you terribly. I hope everyone is doing fine or at least making progress and hanging in there. Has Deb got back from the clinic? How is Justin? How are all of you? Karen, Karen, Susan, Suzanne, Tina, Lena, oh I can't name all of you, but I miss ya'll. Lyn, it sounds like you had an exciting weekend. I love to ride bikes. I started dirt bikes at age 7 and got my first Harley at 16. I don't ride anymore and I am not sure that I could at this point. I have a hard time just riding in a car that is going to fast, like 60 mph. :-) Since my visit to that crazy doctor at the pain clinic I have seen my psychologist twice. The last time was this past Friday. My husband was telling him about these new seizures that I am having. I've been doing it for a while and I just haven't thought much about it. I have them during the day and when I am asleep. I have told the doctors that I have seizures in my sleep. It is not anything new. They feel like everything is shaking. The chair that I am sitting in, the house, ect. My cousin that I told ya'll about does the same thing. Neither of us have considered them to be seizures. My psychologist definitely thought differently. Kyle descibed them to Dr. Battle. They start in my extremities and ripple up. My stomach spasms like ocean waves and I tremble all over, not jerking like my other seizures which is what I consider a seizure, but rather more like a vibration. Kyle said the first time it happened and woke him up, he swore that he could hear it like a spring or tuning fork that had been twanged. Strange, huh? Well, not to my psych. doc, Dr. Battle. Kyle said that the next few times that it happened he definitely felt the whole bed tremble and one other time when he had his head next to mine he heard the vibration again. Dr. Battle said that this was definitely a seizure and he had this funny look on his face. I missed the name that he called it. We went on back to his office for my session, but he called my neuro and he came over right then. They both talked to me and the neuro said that the pain doc I had seen was ludicrous and completely out of line. He was extremely upset by this new (to them) developement. He said that he wanted to talk to some of his colleagues and see what they said. He wants to see me this Wednesday to go over what they decide about these seizures, my migraines and a new pain clinic. He said that he knew of a better one. The neuro took me straight to his office and we talked for a few minutes. He didn't change any of my meds. He wants to wait until he can talk to some other doctors. This is all very strange to me but I guess that I will just keep waiting as I usually do. I do need to call my cousin and tell her because she thinks that she doesn't have seizures, but if these tremblings are seisures, she does have them. We thought that because she didn't have the tonic-clonic or granmal seizures that she wasn't having this one symtom that is the only difference between us. Everything else we both experience. Vertigo, migraines, weakness in legs, extreme tiredness, ect. I guess that I will wait until my visit with the neuro tomorrow before I call her though. No sense in upsetting her until I know more. I feel much better this morning. No migraine yet. They don't usually hit until I have been up a few hours. I only awaken with them when I have had a busy day the day before, like Father's Day. I really miss you guys. I have been thinking about logging back on, but I do have to admit that staying off of the puter does help with my migraines. All my love to ya'll. Write anytime and I will do the same. It has just been busy around here. It's really isn't, it is just hard enough on me to get through a day that it seems busy. Thanks for writing Lyn. Love, Sandra
Lyn, Thanks so much for posting this. I have held off writing to Sandra directly, because I didn't want to upset her, but I think I will drop her a line now. Great news that someone is finally listening to her! -=Karen in Florida=- There are many intelligent species in the world - They are all owned by cats.