Digest Number 237
TO ALL MIGRAINE FRIENDS Hello from Ontario Canada again...I know I do not write in alot, but I do read the letters daily...thought it time for me to put my "two cents" worth in as well......someone mentioned last week sometime about them being happy I have found something that "works".....believe me when I say, I have gone thru hell to get to this point and the quality of life right now is not great but better.....I am on a medical disability for these migraines (I for one refuse to call them headaches)....i have also had needles in the back of my skull, several times with some very horrid side effects, and had lanocane injection up my nose---supposedly to "freeze" the nerve...which lasted all of 5 minutes.....I do take stadol right now but to be honest a bottle a week would be better for me, it seems every other week is somewhat pain free...but there again, I have approval for 2 bottles per month instead of 4 per month as the neuro suggested---he actually said "no more then a bottle a week"......at present I also take Zoloft--helps, but only a little...the zyban seemed to be excellent for me, so am now waiting for approval on this drug as well.....living on disability and raising 3 young children alone (half the income I made when working), makes it tough to survive paying bills and feeding them, let alone paying for drugs not on my coverage list....I do not rock the boat with the medical board right now, because getting 2 bottles of stadol is better then none..so I must choose when to be in pain and when it is mandatory for me to be functional.....what a quality of life huh? Hoping you each find more pain free days, and more understanding doctors...I was once told in Emergency at hospital that a migraine cannot be "faked", when they look into our eyes with those annoying lights, they can tell if we are truly in pain or not...so why the big deal about demerol??anyone else know? huggles to all roxie
Lena: Have you tried for the federal CPP disability pension? I had to go through two appeals and then a tribunal (with the help of a lawyer), but I won in the end. We're now appealing a decision about backdating it. Also, have you tried writing to the drug companies? They don't publicize it, but they will consider requests for reduced-cost or even free drugs for people in need. I was going to try that for Stadol until Roxie told me about having a doctor write to the Ontario disability pensionsupport plan and ask for an excluded drug to be added to the list for me. Cheers! Jeff